News & Events
ASG ATTR and Hereditary Biennial Support Meeting in Chicago Oct 24-26.
The very popular biennial event for ATTR Wild Type and [...]
5th International TTR Symposium in Italy
The 5th international congress dedicated to TTR Amyloidosis will take [...]
CORD meeting in Calgary Apr 30 – May 1
Join CORD and valued partners across the rare disease community [...]
World Amyloidosis Day
October 26: World Amyloidosis Day World Amyloidosis Day, is a [...]
1st International AL Amyloidosis Meeting
The Amyloidosis Alliance has announced the 1st International AL Amyloidosis Meeting will be [...]
The International Society of Amyloidosis
ISA October 2026 - Uruguay The International Society of Amyloidosis [...]
March is Amyloidosis Awareness Month!
Thanks to the efforts to raise awareness, lighting up [...]
Rare Disease Day
Rare Disease Day is a global annual event, recognized by [...]
World Heart Federation: Shining a Light On Rare Cardiovascular Diseases
Cardiovascular disease (CVD) is the leading cause of death worldwide, affecting millions of people every year. While many people are familiar with common CVDs such as coronary artery disease, heart failure and arrhythmias, there are many cardiovascular diseases that are less common and therefore less well-known.
Rare cardiovascular diseases can have a significant impact on an individual’s quality of life, and while individually uncommon, these diseases collectively pose a significant burden on health systems, presenting common challenges that would benefit from coordinated and unified action.
To address these common challenges, the World Heart Federation convened a Rare Cardiovascular Diseases Forum in May 2023, ahead of the World Heart Summit. Cardiac Amyloidosis was selected as one of the four rare cardiovascular diseases to be presented at the forum; Keith Dares from Nova Scotia participated in the forum, sharing his patient experience living with Cardiac Amyloidosis.
Click here to read the full press release: Shining a light on rare cardiovascular diseases – World Heart Federation (world-heart-federation.org)
To read Keith’s summary of the forum, click here. The WHF forum in Switzerland – Amyloidosis Alliance
Amyloidosis Support Groups October 27-29, 2023 (Chicago, Il)
ATTR-Wild Type and Hereditary Amyloidosis Support Group Meeting October 27-29, 2023
“The ASG has been holding this biennial support meeting since 2009. We expect more than 400 patients and caregivers. We will have amyloidosis researchers and clinicians (“amyloidologists”) along with clinical trial liaisons. We have added a “Meet & Greet” to the Friday Night preceding the event.”
4TH International ATTR Amyloidosis Meeting for Patients and Doctors November 2-3, 2023 (Madrid, Spain)
“The 4th congress dedicated to amyloidosis ATTR physicians patients, is the opportunity to meet face-to-face in Madrid on November 02 and 03, 2023. It’s a unique opportunity to connect with the amyloidosis community. Learn more about ATTR amyloidosis, an evolving environment in terms of diagnosis, management and treatment.”
Patients can register for free online access to the patient sessions: please see registration details and detailed program information at attramyloidosis2023.com
