About the Canadian Amyloidosis Support Network

The Canadian Amyloidosis Support Network, Inc., is a federally registered, not-for-profit, all-volunteer organization formed by amyloidosis patients and those close to them. CASN is committed to making a positive difference in the lives of amyloidosis patients and families by promoting awareness, offering patient support, and funding high-value research.

CASN MISSION

The Canadian Amyloidosis Support Network, Inc., is committed to improving survivability and quality of life of amyloidosis patients in order to:

  1. Promote amyloidosis disease awareness in the medical community so it can be recognized earlier and appropriately treated;
  2. Provide patient education, advocacy, support groups and resources;
  3. Support high-value research projects.

CASN’s website amyloidosiscanada.org offers useful information to patients and caregivers:

  • Credible and current amyloidosis publications presented in patient-friendly language
  • Links to treatment centres and other support groups
  • National and international amyloidosis resources
  • Announcements of group meetings (virtual and face-to-face)
  • Links to current clinical trials, as well as other important information

Board of Directors

Jim McWhinnie, President and Treasurer
Keith Dares, Secretary and National/International Representative
Anne Marie Carr, Director

Social Media

CASN provides a Facebook Group for member interchanges: (1) CASN – Canadian Amyloidosis Support Network Inc. | Facebook

CASN uses Twitter to alert followers of breaking news, new information and updates:  Amyloidosis Canada (@Amyloidosis_CA) / Twitter

Our Support Network

Our support network volunteers help patients, caregivers and families stay informed about new treatments becoming available, survivorship concerns and quality of life issues.

All CASN activities are operated and supported entirely by volunteers. Our major source of income is from contributions made at our website; we obtain additional income through fundraisers, patient memorials, legacy gifting, etc.. All donations fund our mission to promote awareness, offer patient  support, and assist with research. CASN is a registered charity (Charitable registration #85343 1583RR0001); tax receipts available for all donations.