Links & Downloads
As we re-create the CASN library of online information, we temporarily re-direct you to the following sources of accurate information:
Amyloidosis: General Information
Canadian Amyloidosis Support Network (information brochure)
Amyloidosis Support Groups (USA) provides an informative brochure “Amyloidosis Awareness”
AmyloidAware_Booklet.pdf (amyloidosissupport.org)
The Leukaemia Foundation (Australia) “A Guide for People Living with Amyloidosis”
Amyloidosis-A-guide-for-people-living-with-Amyloidosis_WEB.pdf (leukaemia.org.au)
Amyloidosis Alliance: The Voice of Patients
(A global organization uniting patient support groups for all types of Amyloidosis)
Information for specific Amyloidosis types
Amyloid Light Chain (AL) Amyloidosis
Cutaneous Amyloidosis
Cutaneous Amyloidosis: Causes, Features, and More — DermNet (dermnetnz.org)
TTR Amyloidosis Home – TTR Amyloidosis Canada (madhattr.ca)
hATTR Patient English ~ hATTR Patient French : Introduction `a l’intention des patients, etc.
TTR Caregiver Guide ~ TTR Caregiver Guide French: Guide `a l’intention des aidants.
Amyloidosis Clinics in Canada
Calgary – Cardiac Amyloidosis Clinic | Libin Cardiovascular Institute | University of Calgary (ucalgary.ca)
Hamilton – Juravinski Hospital – Hamilton Health Sciences
London – Cardiac Diseases & Conditions | LHSC
Montreal- Montreal Heart Institute | Montreal Heart Institute (icm-mhi.org)
Montreal- Centre Hospitalier de l’Université de Montréal | Amyloidosis (chumontreal.qc.ca)
Ottawa – Cardiac Amyloidosis Clinic – University of Ottawa Heart Institute
Scarborough Health Network – Cardiac Amyloidosis Clinic – Scarborough Health Network (shn.ca)
Clinical Trials
Health Canada’s Clinical Trials Database – Canada.ca
Home | ClinicalTrials.gov
(A US database; a place to learn about clinical studies from around the world)
International Amyloidosis Centres of Excellence
Italy Center for the Study and Cure of Systemic Amyloidosis
Foundation IRCCS Polyclinic San Matteo – Adult unit – ERN-RITA
France Reseau Amylose
RESEAU AMYLOSE NATIONAL – Réseau Amylose – réseau de soins (reseau-amylose.org)
Germany Heidelberg University Hospital
Heidelberg University Hospital: Amyloidosis Center (heidelberg-university-hospital.com)
The Netherlands Groningen Unit for Amyloidosis Research & Development
United Kingdom National Centre for Amyloidosis
Australia Princess Alexandra Hospital
Amyloidosis Centre | Metro South Health
Australia Westmead Hospital
Westmead Amyloidosis Service – WSLHD (nsw.gov.au)
Japan Kumamoto University Hospital
Kumamoto University Hospital (www-kuh-kumamoto–u-ac-jp.translate.goog)
