Links & Downloads

As we re-create the CASN library of online information, we temporarily re-direct you to the following sources of accurate information:

Amyloidosis: General Information

Amyloidosis Support Groups (USA) provides an informative brochure “Amyloidosis Awareness”

AmyloidAware_Booklet.pdf (amyloidosissupport.org)

The Leukaemia Foundation (Australia)  “A Guide for People Living with Amyloidosis”

Amyloidosis-A-guide-for-people-living-with-Amyloidosis_WEB.pdf (leukaemia.org.au)

Amyloidosis Alliance: The Voice of Patients

(A global organization uniting patient support groups for all types of Amyloidosis)

Amyloidosis – Amyloidosis Alliance

What if it is Amyloidosis EN                      Et si c’ ‘etait une Amyloidose FR

Information for specific Amyloidosis types

Amyloid Light Chain (AL) Amyloidosis

Myeloma Canada                 Myeloma Canada InfoSheets                     Myeloma UK Info

Cutaneous Amyloidosis

Cutaneous Amyloidosis: Causes, Features, and More — DermNet (dermnetnz.org)

TTR Amyloidosis    Home – TTR Amyloidosis Canada (madhattr.ca)

hATTR Patient English       hATTR  Patient French : Introduction `a l’intention des patients, etc.

TTR Caregiver Guide           TTR Caregiver Guide French: Guide `a l’intention des aidants.

Clinical Trials

Health Canada’s Clinical Trials Database – Canada.ca
Home | ClinicalTrials.gov

(A US database; a place to learn about clinical studies from around the world)

International Amyloidosis Centres of Excellence

Italy Center for the Study and Cure of Systemic Amyloidosis

Foundation IRCCS Polyclinic San Matteo – Adult unit – ERN-RITA

France Reseau Amylose

RESEAU AMYLOSE NATIONAL – Réseau Amylose – réseau de soins (reseau-amylose.org)

Germany  Heidelberg University Hospital

Heidelberg University Hospital: Amyloidosis Center (heidelberg-university-hospital.com)

The Netherlands Groningen Unit for Amyloidosis Research & Development

https://www.amyloid.nl

United Kingdom National Centre for Amyloidosis

National Amyloidosis Centre | Centre for Amyloidosis and Acute Phase Proteins – UCL – University College London

Australia Princess Alexandra Hospital

Amyloidosis Centre | Metro South Health

Australia Westmead Hospital

Westmead Amyloidosis Service  – WSLHD (nsw.gov.au)

Japan Kumamoto University Hospital

Kumamoto University Hospital (www-kuh-kumamoto–u-ac-jp.translate.goog)

Canada Princess Margaret Cancer Centre

Myeloma Clinic | Princess Margaret Cancer Centre (uhn.ca)